I wrote about some of my feelings related to Rett Syndrome on My Rett Body page.
Archive for December, 2008
I have added some information about chewing on My Rett Body page.
Under My Rett Body I have added some about my challenges eating with Rett.
I have added to My Rett Body sharing my experience with anxiety and frustration. I hope it helps other Rett families.
I added some information about how objects and sparkly light distracts me, under My Rett Body.
My focus this past week has been to share how Rett has affected my body. I am so honored by the responses you have left. If you have specific things you are wondering about, please let me know. I may be able to share something about that. I hope my Rett friends are being loved for the wonderful people they are today.
I have added some more information about my hands on My Rett Body.
I am having a hard day holding my breath and hyperventilating. I wrote about it on my new page titled, My Rett Body, if you want to learn more.