Archive for December, 2008

My Rett Emotions

I wrote about some of my feelings related to Rett Syndrome on My Rett Body page.

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I’m Chewing and I Can’t Stop

I have added some information about chewing on My Rett Body page.

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Eating with Rett Challenges

Under My Rett Body I have added some about my challenges eating with Rett.

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Anxiety and Frustration: Living with Rett

I have added to My Rett Body sharing my experience with anxiety and frustration. I hope it helps other Rett families.

Love, Karly

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Sparkly Things Capture My Eyes

I added some information about how objects and sparkly light distracts me, under My Rett Body.

 My focus this past week has been to share how Rett has affected my body.  I am so honored by the responses you have left. If you have specific things you are wondering about, please let me know. I may be able to share something about that. I hope my Rett friends are being loved for the wonderful people they are today.

Karly

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My Hands: They have a mind of their own

I have added some more information about my hands on My Rett Body.

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My Life Holding my Breath

I am having a hard day holding my breath and hyperventilating. I wrote about it on my new page titled, My Rett Body, if you want to learn more.

Love, Karly

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