October is Rett Syndrome Awarenss month. As Karly’s mom, I know how much she struggled throughout her life and ultimately died as a result of the many complications that Rett Syndrome created in her body. These are her some of her last written words:
“God is my best friend, and He has given me so much comfort to have endured disability and pain. But it’s been hard, so I hope that there will be a cure for the young girls who are coming into this world affected by Rett.”
Everyday of her life was full of enormous challenges. She did her best to live well in spite of them. My memory is full of the pain, isolation, stress, grief, loss and fear that Rett Syndrome caused. Karly’s wish was that she could help other girls affected by this disorder by donating to Rett research. Our family will be donating from the generous gifts we have received in Karly’s honor. Please consider doing the same. Karly wrote her own bio for Girlpower2Cure. Go here for making donations in our dear Karly’s honor.
With much gratitude,
Lois (Karly’s Mom)