I remember sitting on my Mom’s lap while she played our piano. The youngest I can remember is 9 months. I was told she held me everyday she could play. I sat in front of her until I was too big for her to play around me. We took a few pictures but it usually happened when the only other person there was my sister Leah. She is a great piano player too. I remember when I got older, about 3 years old I think, I could sometimes get my hands to reach for the keys. I would drum them with my left hand just like I do to this day. My Mom says it looks like I’m tickling the keys.
This memory came back to me this morning when I asked my Mom to play a song on the piano. She doesn’t play often anymore like she used to. She played a song I used to hear her play, “Love Can Build A Bridge…tween Your Heart and Mine.” I love that title, because it’s what music has done for me. It has given me a bridge. Something that can cross over a huge barrier that was caused by Rett Syndrome. I don’t have words, but I have some songs that have gone into the world through me. I thank God for those songs. They have given me a message to share with the world. That message is: don’t assume that people who can’t speak, lack intelligence.
I struggle daily to breathe, to feed myself, to do what others do without thinking about it. I am fortunate because I can communicate, even with Rett Syndrome, but it is a hard life. Today, I feel glad, because even though I’m struggling to breathe normal, I feel happy. I am surrounded by flowers. I have family and friends who believe in me. I have hope that this world’s heart is changing towards girl’s with Rett Syndrome, because of those who believe and try to help us have a great life.
I send my music into the world today. I love this song. I composed it and feel joy every time I hear it again. My sister Leah is playing her viola for this song.