My CD Release party was on Saturday. The room was full of family and friends. My sister Leah came home from Ohio for the day. It was a great day. I had so much contentment because I felt calm and peaceful. I was able to communicate with most of my guests with Amy facilitating. In the room there were four women with Rett Syndrome. It was a beautiful day for me. I did not expect to have this happen in my life, to have a CD that gives me a voice is something I never imagined.
It’s so wonderful to have friends and family who believe bigger things for girls with Rett Syndrome. We are not unable. We are able, if we are allowed. It is something that many people will not understand. I have had a few people say some awful things about me. I only wish to tell them that the day will come when they will have to change their minds. I am not the only female with Rett Syndrome who is able to show that we have intellect. My friend Elizabeth was at my party too. She also uses a keyboard. It’s not something that most people have experienced. To have no voice, no way to point, no way to write, no way to walk and show something, no way to speak or sing. When we found my keyboard method, my life became whole. It made sense because I could communicate. I could tell what was inside of me. I could say what I needed. I could say that I was in there. If you could see what is in our minds, you would know that to give opportunities to those who are unable to demonstrate through no fault of their own, that they are intelligent, is the only right thing to do.
I have been confident that I am doing what I am suppose to do in sharing my story with this world. I don’t regret it, but I regret meeting people who are assuming that their hurtful comments have no effect on me, because they assume I don’t understand. I would never hurt them.
I went into my party with these things in my mind. I want to tell everyone who was there with me, that I felt your belief, I felt your support, I felt your love, and I feel inspired myself to continue doing what I know God created me to do.
Thanks to my friends I have hope and joy today.