This has been a great day. I have started thinking about writing a book recently. I was encouraged by a number of people to share my experience living with Rett Syndrome. I love to write, so putting my ideas into words is easy for me.
I have been asked a question about how I learned to share my thoughts like a typical person who is verbal. I have listened to people talk my entire life, so when I finally had the chance to communicate at the age of 9, it was natural for me to imitate the language I had been hearing. I heard everything spoken around me. I didn’t need to be taught how to form sentences. I had so many sentences in my head waiting to come out. If I needed help it was to find a way to get those sentences out of me.
Back to my book! On Fridays I have a small class I attend for writers who have a disability. I was the only student there today, so I asked my teacher Libby how I should go about writing a book. We spent the next hour coming up with a rough idea of how to form a book. It is so exciting to me to think that someone like me, who has struggled my entire life to be understood, could have enough to say that I could put it into a book.
I continue to give a lot of time to just having my physical needs met, so somedays I am too exhausted to write much. On most days, it brings me great comfort to even find a little time to share my thoughts. If you have any feedback for me, I am anxious to hear it.