In Every Great Struggle

I know in my recent posts-well, let’s face it- in all of my posts I have been rather serious. I’m sure many of you think that I am a sad and rather serious person. I am not at all depressed most days, and I love my life.

I have been fortunate that I have a great family who loves me and has given me great strength and much courage. I am not able to do much in my life without support, so I depend on the involvement of great people. If I knew what I was able to accomplish as an adult when I was a young girl, I would not have been so discouraged with my life. If I was aware that even though I was physically limited, I would be living a great life, I would not have felt so oppressed.

I want parents of young girls with Rett Syndrome to see them through new eyes. We are not so disabled that we cannot have rich lives. I know there are many physical things to be concerned about, but don’t let that stop you from dreaming big dreams about your daughters. It means so much to know that our parents have hope for us.

If we are only given opportunities that are determined by the school systems and therapists, our lives would be very small. I am able to compose music, write for my writing class, ride horses with support, train my miniature horse with my mom, and speak to groups because I have the support I need to do so.

If my Mom didin’t believe in me I wouldn’t have the will to live. I have a purpose for being alive. It is my God given gift to share my life with others because I love life and I know that even though I struggle in my physical body, I have a higher purpose. I believe that one of the reasons I can communicate, is because I am suppose to share my life’s story with others, so that those of us who struggle to be heard and understood can be believed.

I know of many who like me, are silent, and when we get together we understand each other. We don’t need to speak in an audible voice. It helps us to connect to those who are silent. I am capable of having a voice because God has given me the ability to communicate.


4 Responses so far »

  1. 1

    Sandy said,

    All I can say is YOU ARE AMAZING!!! You inspire me everyday!

  2. 2

    Bethany said,

    Karly~ I love you!!! I love how you are an advocate in the biggest way! Personal experience makes for a powerful teacher, and I know that your experiences will give hope to so many others! I miss you tons, and all of our good talks! I know however, that we are both where God needs us to be, and I am constantly amazed by how much you inspire me to live with more courage in my daily endeavors! Keep blogging, keep riding, keep writing, keep composing! You are so wonderful, and I am so blessed to know you!

  3. 3

    Kelly Butler said,

    Well said!
    You encourage us to dream BIG dreams for our daughter!

  4. 4

    Suzie said,

    Hi Karly. I was sent the link to your blog by a friend, Shannon. I don’t want to put last names on here because it is such a public audience. I just wanted to thank you for sharing your experiences. You sound like a very interesting person and I hope someday to get to hear your music as well. I hope you spreading your own story will help many others. Thanks for helping those of us who haven’t had experiences like yours to understand better what it’s like. I realize how little I understand what it’s like to have unnecessary limitations put upon yourself all the time and how it must feel to have people in your life that are only there for the money. You make me realize how much I take for granted. Best wishes as you pursue your dreams! Keep up the great work! I’ll be checking in often!

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