Taking you on a Journey

When I was in elementary school the therapists and teachers were convinced I was functioning at an infantile level.  It was painful to hear what they were presuming about me. I was so sad that none of them tried to give me a way to communicate with them. It was my movements and my vision problems that made any tests they conducted to determine my intellect a ridiculous joke. I am considered profoundly retarded for their purposes. It is an offensive title for any human being, let alone someone who just has a movement and speaking challenge. Can you imagine having people believe you are so ignornat that they don’t give you a chance?

I will not alway be this serious folks. Sometimes I’m very funny!

Come back soon.

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7 Responses so far »

  1. 1

    Sarah said,

    I can kind of image…but not really.
    You see I was a teacher and therapist to some students (past jobs). Now I am a mom just trying to figure out how my kids are wired and there are no “labels” attached to them….at least not yet. I always hoped that I was/am reading them “right”…and I have never really liked “those tests” that I saw in the school system because they left so much info off.
    So, I just want you to know that I am learning so much from you!!!! Keep on talkin’ lady….serious, funny, and anything else.

  2. 2

    montucky said,

    Karly, I’m glad you are writing these things. There are folks out there who need to see your thoughts and gain an understanding of your type of situation. I am interested in your thoughts and will visit your blog often!

  3. 3

    AK_Adventurer said,

    I am so glad that you are able to communicate your thoughts this way, Karly. Your blog posts are so insightful, and I really look forward to reading them…whether they are serious or funny. 🙂

  4. 4

    Sandy said,

    How incredibly frustrating that must of been!! I am so glad that your family always believed in you and helped you find ways to communicate! Keep talking, we want to hear it all!!!!!

  5. 5

    Rebecca said,

    Karly, Thank you for taking us into the mind of a person with Rett Syndrome. I will continue to check in and I would like to link your website so that my family and friends can hear your uplifting stories. My own daughter is 4 1/2 now and was diagnosed with Rett Syndrome at 2 1/2. Please tell us more about your ability to type, and what sort of communication devices you started out with. Thanks again for sharing your story.

    -Rebecca

  6. 6

    Kelly said,

    I LOVE your blog!!
    Thank you for speaking for our girls. I look forward to my daughter’s future in communication despite having Rett Syndrome!

  7. 7

    Lisa said,

    Karly, I just found your blog and I’m so thrilled. I’m a special needs teacher and one of my students has Rett Syndrome. My heart broke to read your post. Like you, my student is so very intelligent. It’s difficult for her to show us what she knows, wants or feels, but I can see it in her eyes and in her expressions. She’s got a wonderful sense of humor, and I just know that if she were able to communicate effectively, she would amaze everyone. She loves music and enjoys it all the way to her soul. When school starts in a week or so, I’d like show her your blog. I think it would be so encouraging for her to see and learn about someone who shares the same experiences as she does. Thank you for being such a positive voice for other girls.


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